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What happens now?

11/11/2021

1 Comment

 
And just like that I've been set free.
My second SCT has been cancelled due to lack of resource. It needed to be done within 6 months of the first (Tandem SCT) and they can't do it. I was upset and disappointed when I was told; I had been confident that having the second SCT would mean that I would see the back of Myeloma for a long time - although that is not necessarily the case. It's maybe the first time I've felt let down by the system. I know they have my back, I'll be monitored and on maintenance treatment so I'll be good, but having everything change so suddenly is not something I do well with.

Step one will be a second COVID injection and then I can plan what happens next.
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1 Comment
Prue Batten link
11/12/2021 03:02:48 am

Damn it, I'm so sorry. And my thoughts are with you.
So what to do? Pack up that wonderful van and take off somewhere with GD where there are big skies and large views and where problems don't seem quite so big in the immensity of the outdoors. It sounds trite, doesn't it? Not meant to be. XXXX

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    Sarah Barron, founder of SMYL

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